Assess each patient’s disease trajectory ­over time, to establish prognosis and potential complications

Select appropriate interventions customised to meet the patient’s needs and goals

Engage other members of the MDT

Be the main point of contact to patients and their families when choosing interventions, including:

• Technological interventions for respiratory and cardiac management

• Interventions such as spinal fusion, contracture management, and provision of aids and appliances

• Pharmacological interventions, such as glucocorticoid therapy, and patient participation in clinical trials of new therapies

Be an advocate for high-quality DMD care, in terms of transition from paediatric to adult care and appropriate hospital care

Help patients and families navigate end-of-life care