Transition of care Footnote 1

Since the 2010 guidelines, the importance of proper transition planning has been recognised

Factors to consider for a young adult with DMD

  • Relationships
    • Develop skills to connect with others to manage own affairs (e.g. social outings and appointments)
    • Work towards desired autonomy and independence
  • Housing
    • Examine where to live (family home vs elsewhere)
    • Modify home for accessibility and safety
    • Use assistive technology
  • Transport
    • Foster independent driving with vehicle modifications
    • Modify family-owned vehicle
    • Investigate accessible public transport options
  • Health care
    • Transition from paediatric to adult care
    • Move from family-centred to patient-centred provider interactions
    • Discuss age-related changes in healthcare benefits
    • Assess the need for durable power of attorney for healthcare
  • Daily living
    • Explore funding and benefits
    • Learn to hire and train personal care attendants
    • Ensure respite for caregivers
    • Consider need for guardianship/deputyship
  • Education or employment
    • Plan early for future vocation
    • Consider classes online vs in person
    • Contact campus programmes for students with disabilities
    • Enlist employment of vocational planning resources