Home > DUCHENNE MANAGEMENT > Duchenne Care

Working together to improve the lives of patients and families

It is possible to help improve the quality of life and life expectancy of individuals with Duchenne muscular dystrophy.1,2 With the right care and access to adequate therapeutic strategies, healthcare teams have been able to:1,3
  • Help delay loss of ambulation
  • Reduce disease complications
  • Improve survival

For your patient, this can mean leading a fulfilling, independent life into adulthood.

These focused, two-page summaries provide you with a digestible overview of the 2018 International Duchenne Care Considerations.

Click on the summaries to view.

Diagnosis and management of Duchenne muscular dystrophy – Part 1
Diagnosis and management of Duchenne muscular dystrophy – Part 2
Diagnosis and management of Duchenne muscular dystrophy – Part 3

Studies have shown that early diagnosis and care can help slow Duchenne muscular dystrophy progression and minimise the risks and complications of the disease.1,2 Click here to find out how you can help drive a successful diagnostic journey.

References
Share

1. Birnkrant DJ, et al. Lancet Neurol. 2018;17:251–267 [Part 1].
2. Mah JK. Neuropsychiatr Dis Treat. 2016;12:1795–1807.
3. Gloss D, et al. Neurology. 2016;86:465–472.

RELATED CONTENT

Find out which clinical specialties are involved in a Duchenne muscular dystrophy care team

Learn more

Genetic counselling: How it can help families affected by Duchenne muscular dystrophy

Learn more

Neuromuscular disorders: What to do if you suspect a neuromuscular disorder

Learn more

Duchenne muscular dystrophy (DMD) management: Learn more about pharmacological treatments in the management of DMD

Learn more
PTC Logo

This site is intended for healthcare professionals residing in the EU only (excluding UK and Ireland healthcare professionals).
© 2020 PTC Therapeutics. GL-DMD-0230 I Date of preparation December 2020

This site is intended for Healthcare Professionals residing in the EU

(excluding UK and Ireland)

I am a Healthcare Professional

Not a healthcare professional but want to know more? Visit Duchenne and You for more information on signs and symptoms of Duchenne, diagnosis and support following a Duchenne diagnosis

Visit Duchenne and You

PLEASE GIVE US YOUR FEEDBACK

Yes No
Cancel Ok

Please ensure all questions are answered before submitting

When providing your feedback, no personal information will be collected, linked or shared with other parties, websites or social media platforms.

Thank you for submitting your response!

Our Use of Cookies

In addition to cookies that are necessary to operate this website, we use optional cookies to provide website functionality and give you the best possible experience. We won't set optional cookies unless you enable them. For more detailed information see our Cookie Statement , which explains among others, how to set your cookie preferences and how to recall your consent.

Cookie Settings

Some cookies are essential, others help us improve your experience by providing insights into how the website is used. Select one or more of the cookie types listed below, and then save your preferences. Refer to our Cookie Statement for more information.

I accept the functional cookies
Functionality cookies, which allow us to enhance your experience (for example by remembering any settings you may have selected).

I accept the advertising/targeting cookies
Advertising/targeting cookies, which we use to track user activity and sessions so that we can deliver a more personalized service, and (in the case of advertising cookies) which are set by the third parties with whom we execute advertising campaigns and allow us to provide advertisements relevant to you.