There are resources available, such as DMD patient educational websites, aimed at patients and caregivers to provide information and support.
Duchenne and You patient website
Developed specifically for patients and caregivers, Duchenne and You helps patients and their families understand the basics about DMD, how it affects the body and why intervention is important. It also provides support and information to help make living with DMD that little bit easier. Duchenne and You has been developed and funded by PTC Therapeutics.Learn more
TREAT-NMD is a global academic network that focuses on advancing research in neuromuscular disorders. The TREAT-NMD website provides a wealth of information on neuromuscular diseases, including best practice care, expert advice, patient registries and disease information.Learn more
The World Duchenne Organization (WDO)
The World Duchenne Organization (WDO) is an advocacy group organisation set up by parents and families of those with DMD around the world.Learn more
Discover the information booklet for parents and carers – a useful resource to help patients, parents and carers learn more about DMD.Learn more
Information booklet for patients and carers
Resources for patients and caregivers to provide information and support.
Duchenne muscular dystrophy comics for children
Educational materials, presented in a comic book style, for children of all age groups.
Information on some of the physiotherapist-recommended stretches for DMD.
Living with Duchenne
Real-life stories from patients and carers living with DMD.
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GL-DMD-0720 | November 2022