Improved patient survival, aligned with advances in diagnostic and therapeutic strategies, means renewed focus on quality of life for patients with DMD. Aligned to this, the 2018 international Duchenne Care Considerations address the needs of patients with prolonged survival, and provide guidance on advances in assessments and interventions.1–3
PTC have developed these focused, two-page DMD Care Considerations summaries to provide you with a digestible overview of the 2018 international guidelines.
Diagnosis and management of Duchenne muscular dystrophy
Part 1 Diagnosis, and neuromuscular, rehabilitation, endocrine, and gastrointestinal and nutritional management.
Download the DMD Care Considerations summaryDiagnosis and management of Duchenne muscular dystrophy
Part 2: Respiratory, cardiac, bone health and orthopaedic management.
Download the DMD Care Considerations summaryDiagnosis and management of Duchenne muscular dystrophy
Part 3: Primary care, emergency management, psychosocial care, and transitions of care across the lifespan.
Download the DMD Care Considerations summaryDownload tools and resources about DMD and access materials tailored for patients and their caregiver.
Find out moreDownloadable tools and resources
Learn more about DMD and access resources tailored for patients and their caregivers.
Duchenne muscular dystrophy patient websites
Find out more about educational websites for patients and families.
Information booklet for patients and carers
Resources for patients and caregivers to provide information and support.
References
1. Birnkrant DJ, et al. Lancet Neurol. 2018;17:251–267.
2. Birnkrant DJ, et al. Lancet Neurol. 2018;17:347–361.
3. Birnkrant DJ, et al. Lancet Neurol. 2018;17:445–455.
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GL-DMD-0718 | November 2022