Resources for patients

There are resources available aimed at patients and caregivers to provide information and support. The Duchenne and You patient website provides information to help understand the basics about Duchenne muscular dystrophy, how it affects the body and why intervention is important. The TREAT-NMD website provides best practice care, advice from experts and patient registries.

There are comic book style educational materials called ‘Mission Duchenne’ which are specifically aimed at children and can be printed.

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Children demonstrating red flag signs and symptoms such as significant development delay could have Duchenne  muscular dystrophy

References

Birnkrant DJ, et al. Lancet Neurol. 2018;17:251–267. National Task Force for Early Identification of Childhood Neuromuscular Disorders. Guide for primary care providers. Available at: https://childmuscleweakness.org/wp-content/uploads/2019/05/PrimaryCareProviderPacket.pdf [last accessed November 2020].
 

Online resources: Find out more about educational websites for patients and families

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Educational materials: Comic books for children and caregivers explaining Duchenne muscular dystrophy

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