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Resources for patients

There are resources available aimed at patients and caregivers to provide information and support. The Duchenne and You patient website provides information to help understand the basics about Duchenne muscular dystrophy, how it affects the body and why intervention is important. The TREAT-NMD website provides best practice care, advice from experts and patient registries.

There are comic book style educational materials called ‘Mission Duchenne’ which are specifically aimed at children and can be printed.

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Children demonstrating red flag signs and symptoms such as significant development delay could have Duchenne  muscular dystrophy

References

Birnkrant DJ, et al. Lancet Neurol. 2018;17:251–267. National Task Force for Early Identification of Childhood Neuromuscular Disorders. Guide for primary care providers. Available at: https://childmuscleweakness.org/wp-content/uploads/2019/05/PrimaryCareProviderPacket.pdf [last accessed November 2020].
 

Online resources: Find out more about educational websites for patients and families

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Educational materials: Comic books for children and caregivers explaining Duchenne muscular dystrophy

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This site is intended for healthcare professionals residing in the EU only (excluding UK and Ireland healthcare professionals).
© 2021 PTC Therapeutics. GL-DMD-0230 | Date of preparation December 2020

This site is intended for Healthcare Professionals residing in the EU

(excluding UK and Ireland)'

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Not a healthcare professional but want to know more? Visit Duchenne and You for more information on signs and symptoms of Duchenne, diagnosis and support following a Duchenne diagnosis

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