Duchenne Resources

Looking to learn more? Here is a compilation of learning resources for healthcare professionals featuring an e-learning module, videos from experts, educational materials, publications and case studies.

Looking for resources for your patients? Here you will find information specifically tailored for patients and their caregiver to read and digest in their own time and at their own pace.

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Children demonstrating red flag signs and symptoms such as significant development delay could have Duchenne  muscular dystrophy

References

Birnkrant DJ, et al. Lancet Neurol. 2018;17:251–267. National Task Force for Early Identification of Childhood Neuromuscular Disorders. Guide for primary care providers. Available at: https://childmuscleweakness.org/wp-content/uploads/2019/05/PrimaryCareProviderPacket.pdf [last accessed November 2020].
 

RCPCH e-Learning module: Recognising neuromuscular disorders

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HCP resources: International Duchenne Care Considerations

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Expert insights: Listen to Dr Luca Bello's expert opinion on reaching a diagnosis and managing Duchenne muscular dystrophy

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HCP resources: Duchenne muscular dystrophy materials for your practice

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Publications: Read some of the latest scientific and clinical research on Duchenne muscular dystrophy

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Genetic counselling offers many benefits for families living with Duchenne muscular dystrophy

References

Helderman-van den Enden AT, et al. Clin Genet. 2011;79:236–242

Online resources: Find out more about educational websites for patients and families

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Educational materials: Comic books for children and caregivers explaining Duchenne muscular dystrophy

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Listen to Dr Annemieke Aartsma-Rus's expert opinion on genetic diagnosis in Duchenne muscular dystrophy

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