Home

Duchenne Resources

Looking to learn more? Here is a compilation of learning resources for healthcare professionals featuring an e-learning module, videos from experts, educational materials, publications and case studies.

Looking for resources for your patients? Here you will find information specifically tailored for patients and their caregiver to read and digest in their own time and at their own pace.

Filter by topic
E-Learning
HCP resources
Guidelines
Resources
Diagnosis
Management
Signs & symptoms
Publications
Patient resources
More
did you know icon

DID YOU KNOW..?

Children demonstrating red flag signs and symptoms such as significant development delay could have Duchenne  muscular dystrophy

References

Birnkrant DJ, et al. Lancet Neurol. 2018;17:251–267. National Task Force for Early Identification of Childhood Neuromuscular Disorders. Guide for primary care providers. Available at: https://childmuscleweakness.org/wp-content/uploads/2019/05/PrimaryCareProviderPacket.pdf [last accessed November 2020].
 

RCPCH e-Learning module: Recognising neuromuscular disorders

Learn more

HCP resources: International Duchenne Care Considerations

Learn more

Expert insights: Listen to Dr Luca Bello's expert opinion on reaching a diagnosis and managing Duchenne muscular dystrophy

Learn more

HCP resources: Duchenne muscular dystrophy materials for your practice

Learn more

Publications: Read some of the latest scientific and clinical research on Duchenne muscular dystrophy

Learn more
did you know icon

DID YOU KNOW..?

Genetic counselling offers many benefits for families living with Duchenne muscular dystrophy

References

Helderman-van den Enden AT, et al. Clin Genet. 2011;79:236–242

Online resources: Find out more about educational websites for patients and families

Learn more

Educational materials: Comic books for children and caregivers explaining Duchenne muscular dystrophy

Learn more

Listen to Dr Annemieke Aartsma-Rus's expert opinion on genetic diagnosis in Duchenne muscular dystrophy

Learn more
LOAD MORE
PTC Logo


© 2021 PTC Therapeutics. GL-DMD-0230 | December 2020

This site is intended for Healthcare Professionals residing in the EU

(excluding UK and Ireland)'

I am a Healthcare Professional

Not a healthcare professional but want to know more? Visit Duchenne and You for more information on signs and symptoms of Duchenne, diagnosis and support following a Duchenne diagnosis

Visit Duchenne and You

PLEASE GIVE US YOUR FEEDBACK

Yes No
Cancel Ok

Please ensure all questions are answered before submitting

When providing your feedback, no personal information will be collected, linked or shared with other parties, websites or social media platforms.

Thank you for submitting your response!

Our Use of Cookies

In addition to cookies that are necessary to operate this website, we use optional cookies to provide website functionality and give you the best possible experience. We won't set optional cookies unless you enable them. For more detailed information see our Cookie Statement , which explains among others, how to set your cookie preferences and how to recall your consent.

Cookie Settings

Some cookies are essential, others help us improve your experience by providing insights into how the website is used. Select the cookie types listed below, and then save your preferences. Refer to our Cookie Statement for more information.

Strictly Necessary cookies
Strictly necessary cookies enable core functionality such as security, network management, and accessibility.

I accept the advertising/targeting cookies
Advertising/targeting cookies, which we use to track user activity and sessions so that we can deliver a more personalized service, and (in the case of advertising cookies) which are set by the third parties with whom we execute advertising campaigns and allow us to provide advertisements relevant to you.