Duchenne patient websites

Duchenne and You patient website

Developed specifically for patients and caregivers, Duchenne and You helps patients and their families understand the basics about Duchenne muscular dystrophy, how it affects the body and why intervention is important. It also provides support and information to help make living with Duchenne muscular dystrophy that little bit easier. Duchenne and You has been developed and funded by PTC Therapeutics.


TREAT-NMD website

TREAT-NMD is a global academic network that focuses on advancing research in neuromuscular disorders. The TREAT-NMD website provides a wealth of information on neuromuscular diseases, including best practice care, expert advice, patient registries and disease information.


The World Duchenne Organisation (WDO)

The World Duchenne Organisation (WDO) is an advocacy group organisation set up by parents and families of those with Duchenne muscular dystrophy around the world.


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