Duchenne Management

There are several stages of the Duchenne muscular dystrophy (DMD) journey from recognising symptoms, diagnosis, treatment and ongoing support. The information in this section will help you navigate this journey by signposting recommendations from the International Duchenne Care Considerations, highlighting members of the multidisciplinary team who can bring additional specialist support and the therapeutic options currently available.

Are you aware of the challenges parents and caregivers face during the DMD journey? Find out more about how you can assist DMD patients and their families.

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Management
Pharmacological therapy
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Children demonstrating red flag signs and symptoms such as significant development delay could have Duchenne  muscular dystrophy

References

Birnkrant DJ, et al. Lancet Neurol. 2018;17:251–267. National Task Force for Early Identification of Childhood Neuromuscular Disorders. Guide for primary care providers. Available at: https://childmuscleweakness.org/wp-content/uploads/2019/05/PrimaryCareProviderPacket.pdf [last accessed November 2020].
 

Expert insights: Dr Damjam Osredkar's expert opinion on diagnosis and management of Duchenne muscular dystrophy

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Duchenne muscular dystrophy management: Read bitesize summaries of standard of care guidelines

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Find out which clinical specialties are involved in a Duchenne muscular dystrophy care team

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Learn about a mother's account of family life after receiving a Duchenne muscular dystrophy diagnosis for her son

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Duchenne muscular dystrophy (DMD) management: Learn more about pharmacological treatments in the management of DMD

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Genetic counselling offers many benefits for families living with Duchenne muscular dystrophy

References

Helderman-van den Enden AT, et al. Clin Genet. 2011;79:236–242

Pharmacological therapy: Learn more about treatment with glucocorticoids

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