The following resources provide information intended for healthcare professionals and for patients with Duchenne and their families.
Interested in learning more on neuromuscular disorders? Please click below to an accredited e-learning module developed by the Royal College of Paediatrics and Child Health (RCPCH). This eLearning module has been supported by a financial grant from PTC Therapeutics. PTC Therapeutics have had no involvement in the development of the content of this module.
The following materials are intended for healthcare professionals. These materials have been developed and funded by PTC Therapeutics.
In this video, Physician Neurologist Dr. Luca Bello explains the importance of early diagnosis and key signs and symptoms to look out for in Duchenne.
In the video below, Dr. Luca Bello describes the key steps in reaching a Duchenne diagnosis from an initial suspicion of the condition.
In the next video, Paediatric Neurologist Dr. Damjan Osredkar discusses his centre's experience in the diagnosis and management of Duchenne. He also describes the benefits of a multidisciplinary care team and explains why it is important to have an individualised DMD care plan.
These focused, two-page summaries provide you with a digestible overview of the 2018 International Duchenne Care Considerations.
The following resources are intended for patients and their families.
Developed specifically for patients, Duchenne and You helps patients understand the basics about Duchenne, how it affects their body and why intervention is important. It also provides support and information to help make living with Duchenne that little bit easier. Duchenne and You has been developed and funded by PTC Therapeutics.
TREAT-NMD provides resources for patients with Duchenne and their families.
These printable educational materials, presented in a comic book style, explain Duchenne in a highly visual and easy to understand way. These have been developed and funded by PTC Therapeutics.
This information is for EU Healthcare Professionals only and not intended for UK nor Ireland Healthcare Professionals. By clicking OK you are confirming that you are a Healthcare Professional based in the EU
If you are not a Healthcare Professional, visit Duchenne and You for more information on signs and symptoms and support following a Duchenne diagnosis.
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