Online resources
DMD information booklet
A guide for patients, parents and caregivers.
Treat DMD Resource
The Guide for Families, can be downloaded from www.treat-nmd.org. This guide contains all the latest information on how Duchenne is diagnosed, how it progresses and the types of support and care you and your family will receive to help you through this journey.
Physiotherapy exercise book (younger children)
This pack contains information on how to perform some
of the stretches your physiotherapist has recommended
for younger children.
Physiotherapy exercise book (older children)
This pack contains information on how to perform some
of the stretches your physiotherapist has recommended
for older children.
Postural management and stretches
Information for adults with Duchenne muscular dystrophy on postural management and stretches.
Educational materials for children and caregivers
These printable educational materials, presented in a comic book style, explain Duchenne muscular dystrophy in a highly visual and easy to understand way and are suitable for different age groups. These have been developed and funded by PTC Therapeutics.
Click the images to download printable PDFs.
Share these useful resources with your patients and their families
Duchenne patient websites
Duchenne and You patient website
Developed specifically for patients and caregivers, Duchenne and You helps patients and their families understand the basics about Duchenne muscular dystrophy, how it affects the body and why intervention is important. It also provides support and information to help make living with Duchenne muscular dystrophy that little bit easier. Duchenne and You has been developed and funded by PTC Therapeutics.
TREAT-NMD website
TREAT-NMD is a global academic network that focuses on advancing research in neuromuscular disorders. The TREAT-NMD website provides a wealth of information on neuromuscular diseases, including best practice care, expert advice, patient registries and disease information.
The World Duchenne Organisation (WDO)
The World Duchenne Organisation (WDO) is an advocacy group organisation set up by parents and families of those with Duchenne muscular dystrophy around the world.
